tag:blogger.com,1999:blog-64908340593817599112024-03-19T02:14:34.334-07:00The Tinkerbelle + Hummingbird M.E. blogThe Tinkerbelle + Hummingbird M.E. Blog is a site where Alison Bell and Hfme creater Jodi Bassett discuss topics relating to life with M.E. (Myalgic Encephalomyelitis )Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.comBlogger116125tag:blogger.com,1999:blog-6490834059381759911.post-4470618883416428992016-06-15T10:40:00.002-07:002016-06-15T10:40:39.030-07:00In Memoriam, and Informations, June 2016<div dir="ltr" style="text-align: left;" trbidi="on">
It is with great sadness but even more love, to share that Jodi Bassett, Hfme creator, Myalgic Encephalomyelitis advocate, writer, artist, daughter, sister, aunt, loved one, friend,,,, died on June 11th 2016 at home surrounded by her loved ones.<br />
<br />Here is her obituary, with now open guest book.<br /><a href="http://m.westannouncements.com.au/obituaries/thewest-au/obituary.aspx?n=jodi-bassett&pid=180305608&referrer=0&preview=True">http://m.westannouncements.com.au/obituaries/thewest-au/obituary.aspx?n=jodi-bassett&pid=180305608&referrer=0&preview=True</a><br />
<br />Please respect her privacy and wishes, and those of her loved ones.<br />
<br />A funeral service is being held Friday June 17 2016.<br />
<br />Jodi gave so much to the world in pm many ways.<br />
<br />Please keep supporting Hfme.org . Please keep sharing the factual information gathered there with full referencing. <br />Please share the Hfme info cards.<br />And equally, to honour true Myalgic Encephalomyelitis advocacy which Hfme was, please do not<~ support anti Myalgic Encephalomyelitis advocacy groups, such as the m.e action network, coal mine, etc etc, as well as the ones jodi was rightly very clear indeed about when she was able to be active in advocacy.<br />
<br />This is the charity for donations in jodi's honour<br /><a href="https://donate.lls.org/lls/donate?utm_source=1698819&utm_medium=banner&utm_campaign=bcam2015&utm_content=0&utm_term=121606691">https://donate.lls.org/lls/donate?utm_source=1698819&utm_medium=banner&utm_campaign=bcam2015&utm_content=0&utm_term=121606691</a><br />
<br />How you can send flowers<br /><a href="https://bloomex.com.au/Legacy-Sympathy-Flowers.html?cobrand=thewest-au&fhid=1&pid=180305608">https://bloomex.com.au/Legacy-Sympathy-Flowers.html?cobrand=thewest-au&fhid=1&pid=180305608</a><br />
<br />Also you can donate to the nightingale foundation (the only Myalgic Encephalomyelitis charity jodi donated to)<br /><a href="http://www.nightingale.ca/index.php?target=support">http://www.nightingale.ca/index.php?target=support</a><br />
<br />Jodi's books<br />
<br />
What is M.E.? (booklet) by Jodi Bassett of hfme.org with a Foreword by Dr Byron Hyde <br />
<br />
Caring For The M.E. Patient by Jodi Bassett of hfme.org with a Foreword by Dr Byron Hyde <br />
<br />
(Also her health healing and Hummingbirds website<br /><a href="http://www.hhhummingbirds.com/">http://www.hhhummingbirds.com/</a><br />
<br />
Also art book Super Cute, Vicious, Dreamy Cats by Jodi Basset )<br />
<br />I know I said I'd not post anything on the blog until I could make the necessary changes, but I dm hope you can understand this being a justifiable sole exception.<br />
<br />Sorry I can't type or do more, know y'all understand inabilities amd symptomology. Amd as always, very sorry for the typos. <br />
<br />Please know I'm with you all. As always my contact details are on this site. My sincerest condolences, love and prayers tm every one of you. You matter very much.<br />
<br />Thank you Jodi, thank you.<br />
<br />Alison Louise Bell, Tink.<br />God bless xx<br />
<br />
<br />
<br />
©TheTinkerbelle+HummingbirdM.E.Blog</div>
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com2tag:blogger.com,1999:blog-6490834059381759911.post-13064754766745241012015-10-21T10:29:00.001-07:002015-10-21T10:29:07.157-07:00News, Co-author. October 2015 (about us amd thir blog)
News, Co-author. October 2015
Hi y'all!
Please know, although for quite some time now I've been unable to post here regularly, you've all been in my thoughts, prayers and heart.
I have some news for you.
Jodi and I are no longer able to do this advocacy work together.
I hope you'll all join me in sending her best wishes and continue to support her and share the amazing hfme.
Myself, jodi and our dear friend and fellow m.e sufferer Ingeborg wrote a blog in late 2012 that I will shortly be posting once her family have sent their contributions in memoriam of Ingeborg and to honour the selflessness of her contribution in order to help others with this horrendous illness.
There is also one other finished blog and I think from memory 3 in work blogs myself and jodi wrote several years ago that I'll need to figure out what to do with. I'll let Y'all know.
I'm far far too ill to change any of the blog, it's format or anything of that kind. There is a blogger app which is how I am posting this and posts for several years now, amd that's all you can do, post. I sincerely apologise for the inconvenience it brings having misinformation on a site like this, and ill change anything, and in turn everything, I can as soon as I can but as y'all are well aware of how this illness is, that could even take years. Again, I apologise. Hope you can all be as understanding as you always have been, you wonderful people you!
I have a beautiful amazing few Co-author whom Altho I can't wait for y'all to meet, love, learn from and advocate with, let's keep this particular post about jodi.
I'll happily pass on any messages to her, so please feel free to use the easy comment stream below, or as always email me on my advocacy email ContactAlisonLouisebell@Gmail.com
Or text or voicemail 07971 151 438
Internationally +44 7971 151 438
It's been so valuable working with jodi over the years, and I'm ever grateful for that. And we have both been incredibly grateful for your support our dear readers! The world of m.e sufferers, and m.e. advocacy needs y'all!
Much love
Alison, of the formerly known as The Tinkerbelle and Hummingbird M.E Blog.
God bless x <div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com2tag:blogger.com,1999:blog-6490834059381759911.post-4892798968162889802015-05-20T14:55:00.001-07:002015-05-20T14:55:52.075-07:00Here. 5.15
This hideous disease takes so much.
If it takes your hope, I'll hope for you.
If you feel it takes your smile, let me tell you, i see the smile of your heart.
If it takes your family or friends, i am here.
If it takes your freedom, ill fly you in my dreams.
I will tell your stories, our stories.
I can't make anything easier, i can't stop disease or suffering or endless hurt or fears for your short future. But i can sit with you in it all, not only i can,, , i do and i will.
Im too ill now. Too ill to be here regularly or properly, i shouldn't be here to post this but hey. But none of that stops me loving you, holding your failing bodies in my heart, seeing you superior souls everywhere in life, and being deeply grateful for you all.
This is so hard. And you are all so wonderful.
Alison/tink
God bless
X x<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>alisonlouisebellhttp://www.blogger.com/profile/02889325872354352472noreply@blogger.com5tag:blogger.com,1999:blog-6490834059381759911.post-7620741806943611622015-02-06T09:58:00.001-08:002015-02-06T09:58:03.792-08:00Quick poll. (life with M.E., poll, M.E vs M.S.)Hi y'all.
Quick poll.
It's a 4 parter.
Please if you're able, answer I Do, or I Didn't or such. No need to go to more effort than you can manage.
If you would rather not comment on the quick and easy to use comment stream below, please feel free to email me (Alison/tink)
contactAlisonLouisebell@gmaill.com
Or text or voicemail me on
07971151438
Internationally +447971151438
Many many thanks for your participation.
Best Wishes, Much Love and Blessings
Alison/Tink
On behalf of
The Tinkerbelle and Hummingbird M.E. Blog x x
1.
Who knows stress, even minor stress, can cause a relapse in M.S.?
2.
Who knows stress, even minor stress, can cause a relapse in M.E.?
3.
Who knows the stress it takes to cause a relapse in M.E. is far less than the level of stress it can take to cause a relapse in M.S.?
4.
Who knows that Any form of relapse in M.E. can leave your baseline permanently lower?
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>alisonlouisebellhttp://www.blogger.com/profile/02889325872354352472noreply@blogger.com5tag:blogger.com,1999:blog-6490834059381759911.post-85967367319593295292015-01-14T10:14:00.001-08:002015-01-14T10:15:14.272-08:00Our 3 Year Anniversary 1.15 (about us and this blog)<p>Our 3 was anniversary is almost upon us. </p>
<p>I have been trying to figure out what to say.</p>
<p>Then I found out it's world Thank you month. And I found that so very apt. Because we are so very grateful for you all. </p>
<p>We know we have been pretty much absent for the past year. And although we can't explain why, we know you of all people understand that sometimes, life gets in the way and it's all you can do to just breathe and get by. </p>
<p>We hope that one day we can get back to regular in depth posts about all manner of subjects to do with Life With M.E.</p>
<p>But until then, please know that we are so grateful for you all, for all the time we spend chatting with you in emails, texts or snail mail, and we are so grateful for all of your continued support. </p>
<p>Happy our 3 year anniversary. </p>
<p>And the biggest thank you to my beautiful best co-authoress Jodi! Your are so incredible. Love you more than you know. You inspire me more than almost anyone. </p>
<p>Best Wishes, Much Love and Blessings </p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgp-nAJ9X_84mXnsKQR38OgiFE7EWo6ZJSd-bmqp4VeQe1rvTrKGpIdPXKHf4DfPbmeEVQSWt2Xscd-daOuCagFZQViGliWoKCDb59JadpFc97aWz1MrYyJ_JmrWJRRCC8sdyzGRfDKCg/s1600/Blog%2525203yr%252520anniversary.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgp-nAJ9X_84mXnsKQR38OgiFE7EWo6ZJSd-bmqp4VeQe1rvTrKGpIdPXKHf4DfPbmeEVQSWt2Xscd-daOuCagFZQViGliWoKCDb59JadpFc97aWz1MrYyJ_JmrWJRRCC8sdyzGRfDKCg/s640/Blog%2525203yr%252520anniversary.jpg"> </a> </div><div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>alisonlouisebellhttp://www.blogger.com/profile/02889325872354352472noreply@blogger.com0tag:blogger.com,1999:blog-6490834059381759911.post-14685533307959837322014-12-22T10:06:00.001-08:002014-12-22T10:06:34.126-08:00Christmas 2014 and New Year 2015 (occasions)<p>You are a Blessing, </p>
<p>Give yourself to others,</p>
<p> & unto yourself !! </p>
<p>Have a Beautiful Christmas </p>
<p>& Much Love for 2015 </p>
<p>The Tinkerbelle & Hummingbird M.E Blog x x</p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEio1Lqumt_SGBk0Zx8_C1qFi-peXwqmHUP-hyVwFWPWkVY3oJbS_ZGxgNM6w3bMmp4oSzlEfMbfeU9EjoRS9I6CnjyHaF4DmBDdOSMGbvuj0XJjrGhIFqMtf6ffxj5XnLPe-zYkbI3pdw/s1600/blog%252520Cmas%2525202014%252520new%252520yr%2525202015.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEio1Lqumt_SGBk0Zx8_C1qFi-peXwqmHUP-hyVwFWPWkVY3oJbS_ZGxgNM6w3bMmp4oSzlEfMbfeU9EjoRS9I6CnjyHaF4DmBDdOSMGbvuj0XJjrGhIFqMtf6ffxj5XnLPe-zYkbI3pdw/s640/blog%252520Cmas%2525202014%252520new%252520yr%2525202015.jpg"> </a> </div><div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>alisonlouisebellhttp://www.blogger.com/profile/02889325872354352472noreply@blogger.com1tag:blogger.com,1999:blog-6490834059381759911.post-46740425183353879052014-11-24T10:41:00.001-08:002014-11-24T10:41:40.892-08:00Thanksgiving 2014 (occasions)<p>Thank you for being a blessing for us.</p>
<p>We are here for you all.</p>
<p>Please feel free to contact me (Alison/tink) anytime, for anything. Especially if you struggle with holidays.<br>
ContactAlisonLouisebell@gmail.com<br>
Text or voicemail 07971151438 or internationally +447971151438<br>
Fax 02083315042<br>
Internationally +4483315042</p>
<p>Best wishes, much love and blessings</p>
<p>Alison<br>
On behalf of</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog</p>
<p>X x</p>
<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9isA7y3ai_cFFdNKXDgBGrIUzOIQH3UDUd_i9wGuNQgypjNn1-ya-B0Sxoxbr2npJSJ2ltacbDGaot8nM7r0VuVdlozsPsYWdg9MMRH-KA4_NjtImVGGfFnZGGsJG8GnS7rzjy6cEhQ/s1600/blog%252520thanksgiving%2525202014.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9isA7y3ai_cFFdNKXDgBGrIUzOIQH3UDUd_i9wGuNQgypjNn1-ya-B0Sxoxbr2npJSJ2ltacbDGaot8nM7r0VuVdlozsPsYWdg9MMRH-KA4_NjtImVGGfFnZGGsJG8GnS7rzjy6cEhQ/s640/blog%252520thanksgiving%2525202014.jpg"> </a> </div><div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>alisonlouisebellhttp://www.blogger.com/profile/02889325872354352472noreply@blogger.com2tag:blogger.com,1999:blog-6490834059381759911.post-35815426262887066292014-10-27T14:41:00.001-07:002014-10-27T14:41:56.726-07:00Re absence. Relapse. (about us and this blog) 10.14Helloooo our beautiful blogger arme!
I'm so sorry for my absence.
I'm sad to say I relapsed. And my very first ever that wasn't a natural health deterioration, or causational one caused by a hospital visit or such. I hope to explain one day if I can, but just not yet.
I hope to be back here regularly in the not too distant future. And I'm really sorry that I haven't been here for so long.
I hope to have the blog edited soon that I mentioned here the last time I wrote, that is about going chemical and toxin free, and detoxification.
When I can find someone to edit it, I'll post be able to post it. And I hope that can tide y'all over till I can post regularly again.
Until then, we really are truly appreciative of your patience and for standing by us through this all. You absolutely are the best followers! We feel so grateful and blessed!
Best Wishes, Much Love and Blessings,
Alison on behalf of
The Tinkerbelle and Hummingbird M.E. Blog x x<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>alisonlouisebellhttp://www.blogger.com/profile/02889325872354352472noreply@blogger.com6tag:blogger.com,1999:blog-6490834059381759911.post-65320606271508104462014-08-27T09:43:00.001-07:002014-08-27T09:43:24.571-07:00Jodi Appreciation Month #2, + Competition 9.14 (occasions, competitions)Apologies but I'm too ill to write a new post, especially a coherent one. So please see last years below about Jodi Appreciation Month. Competition stands also so get your entries in.
I'll try to update you soon on us.
Much love
Alison
God bless x x
//
http://thetinkerbelleandhummingbirdmeblog.blogspot.co.uk/2013/08/jodi-appreciation-month-2013-shout-out.html?m=1
Hi everyone!
A different shout out this month!
So, as the founder of the Jodi Bassett, aka Princess of Oz (poo ;-) ) fanclub, I have allotted September as *We love and thank Jodi* month.
Those of you who feel able, if you can, send your thanks, smiles, stories, hugs, thoughts, appreciations, giggles, and most of all love, to thank her for the astonishing amount she has done for everyone in the M.E. community worldwide, the facts that she has taught doctors, medical professionals, family/friends of sufferers, and the general population, and the support she endlessly gives us all!
Without the selfless work, effort, time and health that she has given us all, not only has she helped our health, quality of life and relationships, but in all reality, she has saved many lives, I have no doubt.
So, whether it be by commenting via the blog, the two yahoo groups, by emailing me ( contactalisonLouisebell@gmail.com ) where i can post it for you or send directly to her if you'd rather keep it private, or by any other means, lets show her our sheer appreciation! It's the least we can do!
Jodi, I am in awe! Truly, thank you, for everything and more. You have helped my heart in so many ways! You have helped my health, my sanity, and my smile. You are one of the most beautiful, kind hearted people, and,,, You are a true advocate for human beings, let alone for people with M.E.! Thank you for everything and everything and everything!
I also noticed I have not held a competition in some while, , , so, , , lets coincide one!
Every person who sends Jodi a message, whether on the blog, in one of the two yahoo groups, or via my email, is entered!
(Note- If you comment but do not wish to be entered into the competition, just let me know)
The goodies up for grabs are, ,
. One of Jodi's beautiful hummingbird artwork prints
. A hummingbird Tibetan charm
. A tinkerbelle Tibetan charm
. A make a wish bracelet (to wear or place somewhere around you)
(please see attached image)
So, are you all ready to send Jodi gratitude, and show her some love?
Ready, , steady, , goooo!
Thanks for reading everyone, let me know if you need any help at all.
Much love
Alison/Tink
God bless x x
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>alisonlouisebellhttp://www.blogger.com/profile/02889325872354352472noreply@blogger.com2tag:blogger.com,1999:blog-6490834059381759911.post-29552805519933003522014-06-27T09:42:00.001-07:002014-06-27T09:42:31.646-07:00Ramadan and Independence day 2014 (occasions)<p>A joint occasions post for our beautiful followers, for Ramadan and for the Fourth of July. </p>
<p>To all our followers of Islam, "Assalamu alaikum wa rahmatullah" (May the peace and mercy of Allah be with you.) </p>
<p>From Huffington Post / USA</p>
<p> "What are the dates of Ramadan? Because the cycle of the lunar calendar does not match the solar calendar, the dates of Ramadan shift by approximately 11 days each year. <br>
In 2014, Ramadan is expected to begin on Sunday, June 29, in the United States, although the date is only confirmed once the moon is sighted. Ramadan for the rest of the world is expected to begin on Saturday, June 28th. <br>
The ending of Ramadan is marked by the holiday of Eid ul-Fitr, which takes place either 29 or 30 days after the beginning of the month.</p>
<p> On Eid ul-Fitr, morning prayers are followed by feasting and celebration among family and friends." </p>
<p>And to our American brothers and sisters, early happy fourth on July. We do hope the fireworks don't disturb you! If you are able to celebrate, in any small way, let us know how!</p>
<p>Best Wishes, Much Love and Blessings <br>
The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>alisonlouisebellhttp://www.blogger.com/profile/02889325872354352472noreply@blogger.com2tag:blogger.com,1999:blog-6490834059381759911.post-27521097938019232482014-06-18T10:35:00.001-07:002014-06-18T10:35:52.798-07:00Patience, Support and Meantime June 2014 (about us and this blog)Patience, Support and Meantime.
June 2014.
Hello to our beautiful blogger arme.
We want to apologise for the lack of major blog discussions over the past months.
Both Jodi and myself have had a lot to deal with recently, but you are a priority for us we hope you know.
We really want to thank you for your patience and continued support, for us and importantly yourselves one another.
I, Alison/Tink, am in the midst of writing a solo major blog about my experiences going chemical free and non toxic. I hope to have it finished in the next few weeks.
In the meantime, why not reread some oldie but goodies on Hfme.
Knowledge along with rest, are your main weapons with this terrible disease. And it can also be incredibly valuable when dealing with ignorant medical professionals and family/friends.
Here are some of my personal recommendations ;
What is M.E. (various lengths)
http://www.hfme.org/whatisme.htm
CFS is always a misdiagnosis
http://www.hfme.org/misdiagnosis.htm
Why M.E. Sufferers can be housebound or bedbound
http://www.hfme.org/houseboundandbedbound.htm
Invisible logic, why M.E. is not an invisible illness
http://www.hfme.org/invisible.htm
Death from M.E.
http://www.hfme.org/medeaths.htm
It would be great if you could tell us what your favourite or recommended Hfme papers by writing in the easy comment stream below, or by contacting me, Alison/Tink via the following means
email contactalisonlouisebell@gmailcom
Text or voicemail
07971151438
Internationally +44791151438
Fax
02083315042
Internationally +4483315042
Once again, thank you for your patience and support. You are all so important to us!
Best Wishes, Much Love and Blessings,
The Tinkerbelle and Hummingbird M.E. Blog x x<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>alisonlouisebellhttp://www.blogger.com/profile/02889325872354352472noreply@blogger.com1tag:blogger.com,1999:blog-6490834059381759911.post-76904041228843529852014-06-04T11:20:00.001-07:002014-06-04T11:20:43.877-07:00More super easy advocacy, belated from May 2014 (occasions)<p>Another Super Easy advocacy,</p>
<p>Reply to The Wright Stuff this time, telling them to go look at Hfme to learn actual facts about m.e.</p>
<p>Because this month is not << awareness month. </p>
<p>Or simply retweet my replies, with one click.</p>
<p>Simples! And makes such a difference if someone with his huge following actually learnt and posted true facts about Myalgic Encephalomyelitis</p>
<p>Thank you folks <br>
Alison/tin<u>k</u> on behalf of<br>
The Tinkerbelle and Hummingbird M.E. Blog</p>
<p>Check out @5WrightStuff's Tweet: https://twitter.com/5WrightStuff/status/465738171339538432 </p>
<p>My replies I implore you to read this http://thetinkerbelleandhummingbirdmeblog.blogspot.co.uk/2014/05/may-occasions.html?m=1 </p>
<p>+ this i sent this previously https://twitter.com/alisonlbell/status/403225578410881024<br>
Please please read these. Its so important to get facts right. Thank you.</p>
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>alisonlouisebellhttp://www.blogger.com/profile/02889325872354352472noreply@blogger.com0tag:blogger.com,1999:blog-6490834059381759911.post-5945348768661278242014-05-02T10:35:00.001-07:002014-05-02T10:35:37.351-07:00May. (occasions)<p>As this time of year comes around once again, it is upon me to remind or point out, with kindness and sadness, the following.</p>
<p>May 12th, is absolutely nothing to do with Myalgic Encephalomyelitis.</p>
<p>It is not <<<<<br>
M.E. Awareness Day, <br>
M.E./Cfs Awareness Day, <br>
or even Cfs Awareness Day.</p>
<p>Whatever faux charities lead us to believe, it is about anything but M.E.</p>
<p>Charities like, whom amongst others, IIME, AFME, The MEA, The Coal Mine Campaign, and the 25% Group, who all, in spite of what they say, are only damaging all sufferers and causing more suffering and even deaths by the misinformation they all continue to attempt to tell the world.</p>
<p>It is a very sad affair to say we live in a world where only this blog, the incomparable Hfme, and The Nightingale Foundation, are the only sites who contain pure, unadulterated, factual information on Myalgic Encephalomyelitis.<br>
But it is the world we find ourselves in none the less.</p>
<p>Please, be an advocate.<br>
Speak up, if you can, in whatever way you can, Im ever small.<br>
Fight for one another, if you are able.<br>
After all. ,</p>
<p> * ‘All that is necessary for the triumph of evil is that good men do nothing’ *.</p>
<p>And </p>
<p>* 'Be the change you wish to see in this world' *.</p>
<p>We also did a post a few years ago, discussing this day.<br>
Please see<br>
http://thetinkerbelleandhummingbirdmeblog.blogspot.co.uk/2012/05/so-called-week-2012-occasions.html?m=0 </p>
<p>Thank you for reading. <br>
You are worth the fight.</p>
<p>Best Wishes, Much Love and Blessings</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com2tag:blogger.com,1999:blog-6490834059381759911.post-3713318625779152752014-04-18T11:03:00.001-07:002014-04-18T11:03:41.230-07:00Easter 2014 (occasions)<p>Happy Easter weekend everyone.</p>
<p>Whether you are of the a<br>
Christian religion or not, ,<br>
May you feel blessed, in any way, it all matters.</p>
<p>Best Wishes, Much love and Blessings</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x<br>
</p>
<div class='separator' style='clear: both; text-align: center;'> <a href='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi44bgZB2Tye2Y1nmXHl0qf0nxbudZ4seHYzu5SdarxYHJXaHBFixsNFHLeGy-Yn8Pn4JzvZEz4R965HEx8I87h1G_NI5csZH95A69vMqb-77FQmhsmlik3mbsP1MwSAXXVslsXgKBi6NiA/s1600/Easter%2525202014.jpg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi44bgZB2Tye2Y1nmXHl0qf0nxbudZ4seHYzu5SdarxYHJXaHBFixsNFHLeGy-Yn8Pn4JzvZEz4R965HEx8I87h1G_NI5csZH95A69vMqb-77FQmhsmlik3mbsP1MwSAXXVslsXgKBi6NiA/s640/Easter%2525202014.jpg' /> </a> </div><div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com4tag:blogger.com,1999:blog-6490834059381759911.post-56108341690035058102014-04-14T10:40:00.001-07:002014-04-14T10:40:54.028-07:00Happy Passover 2014 (occasions)<p>A big happy Passover 2014 to all of our Jewish followers.</p>
<p> Chag Pesach Sameach</p>
<p>Best Wishes, Much Love and Blessings,</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x <br>
</p>
<div class='separator' style='clear: both; text-align: center;'> <a href='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwN_tFObJi8hGmYa_fLSXODelgY0wEQgHd6-EViKKK-CrHRpGquztCMkpGyUVcFFfgLM50KbxCDwJA5l31DCwchFGRYpbIc-CBDGiwWF_hwKuy4pJYIC_wyVUhhvqVgn0edzrmmUdd2C8_/s1600/PicsArt_1396885061414.jpg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwN_tFObJi8hGmYa_fLSXODelgY0wEQgHd6-EViKKK-CrHRpGquztCMkpGyUVcFFfgLM50KbxCDwJA5l31DCwchFGRYpbIc-CBDGiwWF_hwKuy4pJYIC_wyVUhhvqVgn0edzrmmUdd2C8_/s640/PicsArt_1396885061414.jpg' /> </a> </div><div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com0tag:blogger.com,1999:blog-6490834059381759911.post-51136079315705349242014-04-09T10:51:00.001-07:002014-04-09T10:51:03.039-07:00Easter 2014 competition winner is, , , (competitions)<p>And our Easter 2014 competition winner is. , ,</p>
<p>Inge!</p>
<p>Congratulations!</p>
<p>If you let me know any requests for things to enclose, I'll have your winnings sent to you.</p>
<p>Thank you so much for participating everyone!</p>
<p>Happy Easter.</p>
<p>Best wishes, Much Love and Blessings</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class='separator' style='clear: both; text-align: center;'> <a href='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjXCpyTBiVoKVQkWtGTllUKzRi9QPTXH-9_cNIpjH_G3Rcp4sO-8siv-tVw-EUPkDFrb-vdt2zGW4Z8wUZzYYjO87sBpWPm-zlWFhgjPsizL_Ft0elTPMkiLCEQy1VGgqjMbh2x9np5PDku/s1600/Easter%252520comp%2525202014.jpg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjXCpyTBiVoKVQkWtGTllUKzRi9QPTXH-9_cNIpjH_G3Rcp4sO-8siv-tVw-EUPkDFrb-vdt2zGW4Z8wUZzYYjO87sBpWPm-zlWFhgjPsizL_Ft0elTPMkiLCEQy1VGgqjMbh2x9np5PDku/s640/Easter%252520comp%2525202014.jpg' /> </a> </div><div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com0tag:blogger.com,1999:blog-6490834059381759911.post-68987878264098383292014-03-26T12:22:00.001-07:002014-03-26T12:22:32.113-07:00Easter 2014 competition (competitions)<p>Hi everyone!</p>
<p>A little Easter competition is here!</p>
<p>You can win, </p>
<p>. Very easy card making kit <br>
. Very silly egg colouring kit<br>
. Chicken<br>
. Chocolate that you can have, ie dairy or sugar free etc.</p>
<p>(see picture.)</p>
<p>To enter simply tell us either in the easy comment stream, or via email to contactalisonLouisebell@gmail.com</p>
<p>* Something that makes you grateful. *</p>
<p>Good luck!</p>
<p>I will aim to announce the winner on April 9th in order to give the snail mail time to reach you.</p>
<p>Thanks for participating!</p>
<p>Best Wishes, Much Love and Blessings,</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class='separator' style='clear: both; text-align: center;'> <a href='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7m6VfNLLh2LWLaFxTenoyxZwTCJ8vTnHP7qBt-BO16iuVyChWFS_rfW4xCwiCF4UCfX1kky3aOm_hpsr7Y4hPQf8oYsJz15F0Z_LmbdksRaYuOUBlqz2oSInEo3gyN0YOyBZVu54FhWpQ/s1600/Easter%252520comp%2525202014.jpg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7m6VfNLLh2LWLaFxTenoyxZwTCJ8vTnHP7qBt-BO16iuVyChWFS_rfW4xCwiCF4UCfX1kky3aOm_hpsr7Y4hPQf8oYsJz15F0Z_LmbdksRaYuOUBlqz2oSInEo3gyN0YOyBZVu54FhWpQ/s640/Easter%252520comp%2525202014.jpg' /> </a> </div><div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com8tag:blogger.com,1999:blog-6490834059381759911.post-24253987621120345222014-02-12T10:15:00.001-08:002014-02-12T10:15:46.074-08:00Valentines day 2013 (occasions)<p>Happy valentines day to those amongst us who celebrate it.</p>
<p>We know how lonely it can be for those of us who are single, and how wrenching it can be for those of us who manage to be in relationships.</p>
<p>We admire you all!</p>
<p>Here,,, is our love! <~~~</p>
<p>Best Wishes, Much Love and Blessings,</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com4tag:blogger.com,1999:blog-6490834059381759911.post-12370778119090070692014-02-07T10:20:00.001-08:002014-02-07T10:20:02.086-08:00Valentines 2014 competition winner (competitions)<p>And, ,<br>
Our valentines 2014 competition winner is, , </p>
<p>Amity </p>
<p>Congratulations!</p>
<p>If you let me (alison/tink) know a suitable postal address, I'll have your winnings sent asap.<br>
Let me know what colours you would prefer for your sox, and<br>
If you let me know what chocolate you can have, ie sugar or dairy free etc, I'll try to enclose some too.</p>
<p>Again, congratulations!</p>
<p>Best Wishes, Much Love and Blessings</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class='separator' style='clear: both; text-align: center;'> <a href='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHNZs5f5u69VLAJhG2fYfeZseYA67V0C0DSVOj5iCt3oSD4W4VBV8noJ29GrTjMXqTqOG8okJN1kvwEOwrcdpj2xtfTs9kHUcgiOe7C3RnJOCP5xAnURH4-1pP9m2OeUMhV5LBkl9yljEc/s1600/valentines%252520comp%2525202014.jpg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHNZs5f5u69VLAJhG2fYfeZseYA67V0C0DSVOj5iCt3oSD4W4VBV8noJ29GrTjMXqTqOG8okJN1kvwEOwrcdpj2xtfTs9kHUcgiOe7C3RnJOCP5xAnURH4-1pP9m2OeUMhV5LBkl9yljEc/s640/valentines%252520comp%2525202014.jpg' /> </a> </div><div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com0tag:blogger.com,1999:blog-6490834059381759911.post-166690844383000592014-01-29T10:13:00.001-08:002014-01-29T10:13:54.401-08:00February 2014 shout outs (shout outs)<p>As February arrives, we wish one of our blogger arme a very happy birthday,</p>
<p>Love to you Sophie!</p>
<p>Thank you for being you! And for your sweet smile. </p>
<p> Also, as with every month, We also send huge shout outs to,,,</p>
<p>Anyone who has a birthday this month</p>
<p>Anyone who has any form of anniversary this month</p>
<p>and Much love and Blessing to Anyone who died of M.E. in the month of January, or February, now or past. (and to their families and friends)</p>
<p>If you would like your name to be included in future shout outs for your Birthday, Anniversary or a post in memory of someone who has died from M.E. please either leave your name and date on the comment stream below., or email me (Alison) on contactalisonlouisebell@gmailcom <br>
However if you would rather your name is not made public, let me know and I'll send you a private email when the date occurs.</p>
<p>Best Wishes, Much love and Blessings,</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x<br>
</p>
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com2tag:blogger.com,1999:blog-6490834059381759911.post-21344375887861445072014-01-20T10:11:00.001-08:002014-01-20T10:11:04.396-08:00A little big question, your input (life with M.E.)<p>Hi our dear blogger arme.</p>
<p>We have a little, but big, question for you all today.</p>
<p>What do you do, when you are going through something that has broken your heart, and you are stuck in your house or in your bed, all alone, with nothing to help you, what do you do to cope?</p>
<p>We would really appreciate your thoughts on this, ,anonymously and/or confidentially if it's easier, whether it be on our comment stream below, or via <br>
*email at contactalisonLouisebell@gmail.com <br>
* text/voicemail/whatsapp 07971151438 or internationally +447971151438 <br>
* or kik alisonLouisebell</p>
<p>Our love to every single one of you, because we know you will all go through/will have gone through this at some point. <br>
We are here for you all!</p>
<p>Best Wishes, Much Love and Blessings</p>
<p>Jodi/Hbird and Alison/Tink</p>
<p>Aka<br>
The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com20tag:blogger.com,1999:blog-6490834059381759911.post-30481983984381270742014-01-20T10:09:00.001-08:002014-01-20T10:09:12.319-08:00Valentines day 2014 Competition (competition)<p>It's competition time again our lovely blogger arme!</p>
<p>Valentines day 2014 will be here sooner than we imagine.</p>
<p>On this occasion, You could win </p>
<p>. 7 inch digital photo frame<br>
. Pack of socks (I've several colours/types etc for you to choose from.)</p>
<p>To enter, simply tell us something that you love. Be it simple, imaginative, anything at all.</p>
<p>Competition closes the morning of February 7th 2014.</p>
<p>I will announce the winner that very evening.</p>
<p>Keep a look out to see if you win so that you can let me know your postal address in order to have your goodies with you in time for the day of love (country/post dependant) . </p>
<p>Good luck.</p>
<p>We love you all.</p>
<p>Best Wishes, Much Love and Blessings,</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class='separator' style='clear: both; text-align: center;'> <a href='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvIZn4u4HHGx9PClgZY5e9EalcsRgFEX0aCHeJbnwL7QKLSK9qWaJlcH57hrxiIOxT_o1n0Lkqv_AAGqUnzeJ0JI7AWYJOzDUToNTwSZCRlT6NiX-hhXaSLbOkLDPECcWb3zt3p-p74aSO/s1600/valentines%252520comp%2525202014.jpg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvIZn4u4HHGx9PClgZY5e9EalcsRgFEX0aCHeJbnwL7QKLSK9qWaJlcH57hrxiIOxT_o1n0Lkqv_AAGqUnzeJ0JI7AWYJOzDUToNTwSZCRlT6NiX-hhXaSLbOkLDPECcWb3zt3p-p74aSO/s640/valentines%252520comp%2525202014.jpg' /> </a> </div><div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com1tag:blogger.com,1999:blog-6490834059381759911.post-33034394092028334942014-01-15T09:22:00.001-08:002014-01-15T09:22:27.454-08:00Our 2 year anniversary (occasions, about us and this blog)<p>It really doesn't seem like it, but our 2nd anniversary is almost upon us!</p>
<p>May we take a moment to thank you all for being part of our community for another year.</p>
<p>We hoped to inform about this horrendous illness, help with both suffering and understanding, create a safe place for you all to gather amongst friends and equals, and be people whom you can talk with and confide in.</p>
<p>I (Alison/tink) have no idea if we achieved any of those, but I can say it has been such an honour to try.</p>
<p>Thank you, each and every one of you, for taking the time to visit our blog, read our posts and discussions, sharing us as many times as you could, contacting us, and for being such truly wonderful people.</p>
<p>We are so very grateful for you all.</p>
<p>And Jodi/Hbird, , my oh my. <br>
This wouldn't be anything without you. <br>
I am truly honoured to co-do this with you. Love and admire you beyond words.<br>
Thank you Jodi!</p>
<p>Best Wishes, Much Love and Blessings,</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com2tag:blogger.com,1999:blog-6490834059381759911.post-23723246719728753722013-12-27T03:53:00.001-08:002013-12-27T03:53:31.280-08:00A little message as we welcome 2014 (occasions)<p>As another year dawns, and we look back over another year, may you know you have been valued and loved. </p>
<p>We know how disheartening it can be knowing yet another year has passed, and you are still ill.</p>
<p>We are so very grateful for you all, and hope that 2014 is a year that will be as comfortable and happy as possibly possible for you all.</p>
<p>Feel free to contact me, Alison/Tink anytime for anything. It may take me a few days to reply but I most absolutely will, with huge pleasure. </p>
<p>Happy New Year all!</p>
<p>Best Wishes, Much Love and Blessings</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com1tag:blogger.com,1999:blog-6490834059381759911.post-80989443965216663232013-12-23T10:12:00.001-08:002013-12-23T10:12:29.539-08:00Christmas 2013 (occasions)<p></p>
<p>Hello everyone.</p>
<p>It's almost upon us again,,, Christmas. <br>
Doesn't it just come back around faster and faster.</p>
<p>We know how isolating, lonely and bittersweet occasions can be, especially when everyone is celebrating, and you are ill.</p>
<p>We hope the day shines a wee smile upon your hearts at some point, and that you do not feel too overwhelmed.</p>
<p>If any of you would like/need to talk, please feel free to email me (alison/tink). It really is an honour talking with you all.</p>
<p>Happy Christmas our dear Blogger Arme.</p>
<p>Best Wishes, Much Love and Blessings</p>
<p>The Tinkerbelle and Hummingbird M.E. Blog x x</p>
<div class='separator' style='clear: both; text-align: center;'> <a href='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEcDcCkSmg0sG1owHvyZixelkQ35NDOIEDF6qhBFxVEJlDeGY-pEtYIxvjyuff_wu1R5Oa_mYzPAd9ColbNB24xpf8GTLJRF-kTGcOWECTbFsaTfSVl3wpkAsBuHi0lbu66fJmwWrfbjFW/s1600/PicsArt_1387125022159.jpg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEcDcCkSmg0sG1owHvyZixelkQ35NDOIEDF6qhBFxVEJlDeGY-pEtYIxvjyuff_wu1R5Oa_mYzPAd9ColbNB24xpf8GTLJRF-kTGcOWECTbFsaTfSVl3wpkAsBuHi0lbu66fJmwWrfbjFW/s640/PicsArt_1387125022159.jpg' /> </a> </div><div class='separator' style='clear: both; text-align: center;'> <a href='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzp89qxONGwKu8xIQYrm1TW7gEs-hnI7qgBhJvdloKW7KH4PrUQrZfi9MhpNjRyUqgM65jOGg-AaFGj0X5sowlVOjoFsCnz1yjVoDsmJ4cl9TC8oeHOQW8QAZXXrpzJmO2Hm2QsgHw70TV/s1600/PicsArt_1387125112681.jpg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzp89qxONGwKu8xIQYrm1TW7gEs-hnI7qgBhJvdloKW7KH4PrUQrZfi9MhpNjRyUqgM65jOGg-AaFGj0X5sowlVOjoFsCnz1yjVoDsmJ4cl9TC8oeHOQW8QAZXXrpzJmO2Hm2QsgHw70TV/s640/PicsArt_1387125112681.jpg' /> </a> </div><div class="blogger-post-footer">©TheTinkerbelle+HummingbirdM.E.Blog</div>Anonymoushttp://www.blogger.com/profile/01145835852289202474noreply@blogger.com0