News, Co-author. October 2015 (about us amd thir blog)

News, Co-author. October 2015 Hi y'all! Please know, although for quite some time now I've been unable to post here regularly, you've all been in my thoughts, prayers and heart. I have some news for you. Jodi and I are no longer able to do this advocacy work together. I hope you'll all join me in sending her best wishes and continue to support her and share the amazing hfme. Myself, jodi and our dear friend and fellow m.e sufferer Ingeborg wrote a blog in late 2012 that I will shortly be posting once her family have sent their contributions in memoriam of Ingeborg and to honour the selflessness of her contribution in order to help others with this horrendous illness. There is also one other finished blog and I think from memory 3 in work blogs myself and jodi wrote several years ago that I'll need to figure out what to do with. I'll let Y'all know. I'm far far too ill to change any of the blog, it's format or anything of that kind. There is a blogger app which is how I am posting this and posts for several years now, amd that's all you can do, post. I sincerely apologise for the inconvenience it brings having misinformation on a site like this, and ill change anything, and in turn everything, I can as soon as I can but as y'all are well aware of how this illness is, that could even take years. Again, I apologise. Hope you can all be as understanding as you always have been, you wonderful people you! I have a beautiful amazing few Co-author whom Altho I can't wait for y'all to meet, love, learn from and advocate with, let's keep this particular post about jodi. I'll happily pass on any messages to her, so please feel free to use the easy comment stream below, or as always email me on my advocacy email ContactAlisonLouisebell@Gmail.com Or text or voicemail 07971 151 438 Internationally +44 7971 151 438 It's been so valuable working with jodi over the years, and I'm ever grateful for that. And we have both been incredibly grateful for your support our dear readers! The world of m.e sufferers, and m.e. advocacy needs y'all! Much love Alison, of the formerly known as The Tinkerbelle and Hummingbird M.E Blog. God bless x

Here. 5.15

This hideous disease takes so much. If it takes your hope, I'll hope for you. If you feel it takes your smile, let me tell you, i see the smile of your heart. If it takes your family or friends, i am here. If it takes your freedom, ill fly you in my dreams. I will tell your stories, our stories. I can't make anything easier, i can't stop disease or suffering or endless hurt or fears for your short future. But i can sit with you in it all, not only i can,, , i do and i will. Im too ill now. Too ill to be here regularly or properly, i shouldn't be here to post this but hey. But none of that stops me loving you, holding your failing bodies in my heart, seeing you superior souls everywhere in life, and being deeply grateful for you all. This is so hard. And you are all so wonderful. Alison/tink God bless X x

Commenting

Dear All.
I am terribly sorry for the Google Login setting that meant you had to have a Google account to comment. I have fixed this error and now Aynone can comment.
However if you have any problems, you can email me (Alison) your comments which I will be happy to place for you, either with credit or anonymously.
Once again, apologies for my mistake.
We truly appreciate all your comments,
You are the reasons we are doing this blog.

Best wishes, Much love and Blessings
The Tinkerbelle and Hummingbird M.E. Blog

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