News, Co-author. October 2015 (about us amd thir blog)

News, Co-author. October 2015 Hi y'all! Please know, although for quite some time now I've been unable to post here regularly, you've all been in my thoughts, prayers and heart. I have some news for you. Jodi and I are no longer able to do this advocacy work together. I hope you'll all join me in sending her best wishes and continue to support her and share the amazing hfme. Myself, jodi and our dear friend and fellow m.e sufferer Ingeborg wrote a blog in late 2012 that I will shortly be posting once her family have sent their contributions in memoriam of Ingeborg and to honour the selflessness of her contribution in order to help others with this horrendous illness. There is also one other finished blog and I think from memory 3 in work blogs myself and jodi wrote several years ago that I'll need to figure out what to do with. I'll let Y'all know. I'm far far too ill to change any of the blog, it's format or anything of that kind. There is a blogger app which is how I am posting this and posts for several years now, amd that's all you can do, post. I sincerely apologise for the inconvenience it brings having misinformation on a site like this, and ill change anything, and in turn everything, I can as soon as I can but as y'all are well aware of how this illness is, that could even take years. Again, I apologise. Hope you can all be as understanding as you always have been, you wonderful people you! I have a beautiful amazing few Co-author whom Altho I can't wait for y'all to meet, love, learn from and advocate with, let's keep this particular post about jodi. I'll happily pass on any messages to her, so please feel free to use the easy comment stream below, or as always email me on my advocacy email ContactAlisonLouisebell@Gmail.com Or text or voicemail 07971 151 438 Internationally +44 7971 151 438 It's been so valuable working with jodi over the years, and I'm ever grateful for that. And we have both been incredibly grateful for your support our dear readers! The world of m.e sufferers, and m.e. advocacy needs y'all! Much love Alison, of the formerly known as The Tinkerbelle and Hummingbird M.E Blog. God bless x

Here. 5.15

This hideous disease takes so much. If it takes your hope, I'll hope for you. If you feel it takes your smile, let me tell you, i see the smile of your heart. If it takes your family or friends, i am here. If it takes your freedom, ill fly you in my dreams. I will tell your stories, our stories. I can't make anything easier, i can't stop disease or suffering or endless hurt or fears for your short future. But i can sit with you in it all, not only i can,, , i do and i will. Im too ill now. Too ill to be here regularly or properly, i shouldn't be here to post this but hey. But none of that stops me loving you, holding your failing bodies in my heart, seeing you superior souls everywhere in life, and being deeply grateful for you all. This is so hard. And you are all so wonderful. Alison/tink God bless X x

Quick poll. (life with M.E., poll, M.E vs M.S.)

Hi y'all. Quick poll. It's a 4 parter. Please if you're able, answer I Do, or I Didn't or such. No need to go to more effort than you can manage. If you would rather not comment on the quick and easy to use comment stream below, please feel free to email me (Alison/tink) contactAlisonLouisebell@gmaill.com Or text or voicemail me on 07971151438 Internationally +447971151438 Many many thanks for your participation. Best Wishes, Much Love and Blessings Alison/Tink On behalf of The Tinkerbelle and Hummingbird M.E. Blog x x 1. Who knows stress, even minor stress, can cause a relapse in M.S.? 2. Who knows stress, even minor stress, can cause a relapse in M.E.? 3. Who knows the stress it takes to cause a relapse in M.E. is far less than the level of stress it can take to cause a relapse in M.S.? 4. Who knows that Any form of relapse in M.E. can leave your baseline permanently lower?

Our 3 Year Anniversary 1.15 (about us and this blog)

Our 3 was anniversary is almost upon us.

I have been trying to figure out what to say.

Then I found out it's world Thank you month. And I found that so very apt. Because we are so very grateful for you all.

We know we have been pretty much absent for the past year. And although we can't explain why, we know you of all people understand that sometimes, life gets in the way and it's all you can do to just breathe and get by.

We hope that one day we can get back to regular in depth posts about all manner of subjects to do with Life With M.E.

But until then, please know that we are so grateful for you all, for all the time we spend chatting with you in emails, texts or snail mail, and we are so grateful for all of your continued support.

Happy our 3 year anniversary.

And the biggest thank you to my beautiful best co-authoress Jodi! Your are so incredible. Love you more than you know. You inspire me more than almost anyone.

Best Wishes, Much Love and Blessings

The Tinkerbelle and Hummingbird M.E. Blog x x