About Us and This Blog

About us and The Tinkerbelle and Hummingbird M.E. Blog

The Tinkerbelle and Hummingbird M.E. Blog is run collaboratively by myself, Alison Bell and HFME wonder Jodi Bassett.

I (Alison) am 28, and live in the UK. I have had M.E. my whole life looking back on it, but I have been house bound and or Bed ridden for 12 years in February coming (2012).

Jodi lives in Australia. In March 1995 at the age of 19, went from being very healthy and happy one day to having problems standing upright for more than a few minutes at a time, the next. She suddenly had over 60 individual symptoms, and could only do 40% or less of my pre-illness activities. She had a textbook case of M.E. although she didn’t learn that until almost a decade later.

Jodi started her ‘Hummingbirds’ Guide to M.E.’ site in around 2004 and in 2009 decided to try and use her  ‘good’ half an hour a day (on average) to try and get the facts about M.E. (including the impossible to overstate importance of avoiding overexertion) to a much wider audience and so the ‘Hummingbirds’ Foundation for M.E.’ (HFME) was founded, with the help of some like-minded fellow M.E. patients.

For a Full in-depth ‘About Us’ blog posting, please see the following link http://thetinkerbelleandhummingbirdmeblog.blogspot.com/2012/01/in-depth-about-us-and-this-blog.html

 

Our aims here are to discuss all aspects of life with M.E.  (Myalgic Encephalomyelitis).

We hope that the readers here will be interactive with us, share your thoughts and comments on topics that we discuss, request topics for future blog posts, and maybe even share your testimonies/stories.

We hope that in some small way, that this blog can help educate people and be of some comfort to sufferers alike.

We hope the day you read this is treating you as well as possible and that you know we care.

Best Wishes, Much love and Blessings

The Tinkerbelle And Hummingbird M.E. Blog


Note ;

If there is anything I (Alison) can do, I AM HERE. These are no words for comfort, or a pity gesture, nor merely meant when written. As long as I am here (which with having M.E. is never certain, not that any life is) I will be here for you, or any of the people commenting on and/or reading this thread.

Please note however, any of medical M.E. bits I will forward on to lady Jodi as her knowledge precedes anyones!

So here are my contact details, for you, or even any of your family/friends, be it m.e. sufferer, relative of a sufferer, or simply someone trying to learn.

Email contactalisonlouisebell@gmail.com


Mobile for text or voicemail 07971151438 (remember I’m in the UK, for international it’s +447971151438)

Fax 02083315042 (International 00442083315042), (headed PRIVATE FOR MISS A L BELL as my father passes them to me from downstairs and some are medical docs, so this will make sure he won't read it.)