About HFME
The HFME's organisation
The HFME was founded in May 2009.
The leader/founder of the group is Jodi Bassett.
The foundation will have an international committee, and will soon invite members from all over the world to join the foundation and to participate in its advocacy work.
Membership in the foundation will be conditional on members supporting the stated aims of the HFME.
Members will be encouraged to participate as much as possible in ongoing advocacy efforts, and to contribute constructive criticism and suggestions for the HFME.
The option to apply for paid membership in the HFME is coming soon!
Note that as of July 2009 this website is virtually completed (more than 95%) but that a small number of pages may not yet be available and a very small number of links may be incorrect. We appreciate your patience..
Important note:
If you have M.E. or are the parent of a child with M.E. (or are linked in some other way to M.E.), and would like to play a part in HFME and in the discussion group involved in the setting-up and running of the HFME, please view the 'HFME's Aims' section below.
If you strongly support these aims, please email Jodi Bassett with your details. Small and large contributors are welcome! Every small contribution counts. We need your help to make this project work!
The HFME's mission statement ;
The HFME is dedicated to fighting for the recognition of Myalgic Encephalomyelitis based on the available scientific evidence, and for patients worldwide to be treated appropriately and accorded the same basic human rights as those with similar disabling and potentially fatal neurological diseases such as Multiple Sclerosis.
