Our dear blogger arme.
I recently wrote this in a few groups I belong to, and have had some wonderful responses. So I am sharing it here in the hopes that we, as a group of people suffering from this horrendous illness, can make a wider impact regarding this issue.
Many thanks.
Alison
*Anyone who cares enough to do a tiny effort but hugely important advocacy move, who is on twitter, reply to Stephen fry to tell him the very very basic info that M.E. is not cfs, and that advertising so does so much harm and contributes to the ignorance and pain he is speaking of! And that this kickstarter campaign he is also advertising, is also doing exactly that!
If it's easier, simply retweet my message to him and make sure he sees it, (here http://www.twitlonger.com/show/n_1rrvlot )
It's one click if you do it that way, but one that could make a huge difference!
Be heard people, help be the change we need to see in this. World! What is that other quote about all it takes for evil is for good people to do nothing, super apt here!
Iv attached a link below to his profile, the tweet was 4th down i think? So you don't have to scroll far. (Note, it's now a little further)
I've also attached links to show him to help him learn!
Thank you to those who do this.
I have not been on twitter since my relapse, but made a very important exception for this. His tweets and words reach such a wide audience, hence why it's extra important we help him learn the error of his ways, however well meaning they are.
Truly thank you to anyone here who tries!
Much love
Alison
On behalf of
The Tinkerbelle and Hummingbird M.E. Blog
https://mobile.twitter.com/stephenfry
* Sir, please hear the very very basic info that M.E. is not cfs, and that advertising so does so much harm and contributes to the ignorance and pain you are speaking of! And that this kickstarter campaign you are also advertising, is also doing exactly that!
M.E. is an acquired neurological disease., similar to M.S. - You do not even have to have fatigue as a symptom!
I implore you to read the following articles
http://m.hfme.org/site/webs_41924925/home?url=http%3A%2F%2Fwww.hfme.org%2Fmethemedicalfacts.htm
And
http://m.hfme.org/site/webs_41924925/home?url=http%3A%2F%2Fwww.hfme.org%2Fmeisnot.htm
As well as look at these two informative and factual sites
http://m.hfme.org/site/mobile#3131
And
http://thetinkerbelleandhummingbirdmeblog.blogspot.co.uk/?m=1
Your tweets and words reach such a wide audience, hence why it's extra important we help you learn the error of your ways, however well meaning they are.
I know you are an exceptionally busy man, but please, your taking moments to read the above could help literally thousands and thousands of people.
I say all this with kindness and huge hopes.
Please contact me if you would like to discuss this further or if i can help in any way.
With gratitude, Alison Bell, severe sufferer and advocate, uk. *
https://mobile.twitter.com/stephenfry
